Dylan was a sassy, energetic four year old, ready for Pre-Kindergarten and signed up for ballet and soccer. She loved baking, music, fashion and Barbies. In the summer of 2018, one of Dylan’s eyes started turning in. She was subsequently diagnosed with a lazy eye. The eye seemed to get worse, then Dylan began having balance issues and finally, random vomiting. We were able to get her an appointment at the Casey Eye Institute in Portland, OR. After looking into her eyes, the eye doctor said “let’s talk”, and it was clear something was wrong. We went over to the Doernbecher Children’s hospital emergency room for an MRI. On August 8th, 2018, Dylan was diagnosed with diffuse intrinsic pontine glioma (DIPG).
Dylan endured 47 rounds of radiation, a PICC line in her arm for over a year, many MRIs, doctor appointments, etc. She swallowed many pills a day, got IV therapy several times a week, and rarely complained. However, she remained sharp, sassy and in many ways, the same old Dylan.
After battling for 20 months, Dylan passed away on April 9th, 2020. She is missed every day.